Our Struggles with Asperger’s Syndrome

When my son Taylor was about a year old, I started noticing things that didn’t seem quite “normal.” When he would have temper tantrums, he would throw himself backward with such force, it scared me that he would really hurt his head. When he was walking, he would walk on his tiptoes. These are things most kids grow out of by the time they are three, but Taylor didn’t. He still walks like that sometimes at almost twelve years old.

When he started kindergarten in 2004, his teacher came to me and said she believed he had ADHD. I took him to start seeing a psychiatrist to have him evaluated. Another thing I noticed was that his anger was explosive. He would go from being the sweetest kid alive, to a holy terror in sixty seconds. It started happening more frequently. Then I got a call one day that he was suspended from kindergarten for a few days because he choke-slammed a kid for cutting in line for the bathroom. He was diagnosed as ADHD, and I voiced my concern about him being autistic, as I had read about it and many of the signs seemed apparent to me. But the psychiatrist shot down the idea. We tried several cocktails of drugs, finally settling on Concerta and Strattera, both nonstimulants. It takes him from uncontrollable to quiet. I feel like I lose a piece of his personality with every pill he swallows. And I have agonized over the long-term effects. But I know that he needs it to help him keep it together during the long, stressful day at school.

During this time period, Andy was deployed to Iraq for the first time, so I was alone to deal with it myself. Taylor’s fits became more enraged and harder to control. I learned that there was no way to make him understand someone else’s point of view, so diffusing him was the only way to get him to calm down. Even at six, he would try to hit himself, or slam his head in to the wall. It’s very disturbing to watch your child try to seriously hurt themselves. His eyes grow dark and cold when this happens ... completely disconnecting from me. During this same time period, I moved the kids and myself down to our new duty station in Georgia to wait for Andy to get home. We were there for about a week, when Taylor had a major meltdown. He kept going in to the kitchen and taking knives out of the drawer ... not butter knives, but big, sharp ones. He said he wanted to kill himself. I thought he was attention seeking, trying to get his own way by shocking me. I didn’t know what to do. I had to take all the knives from the kitchen and lock them in my closet, but he still kept getting up through the night and trying to sneak in to take them. Finally, at about 5 a.m. and emotionally destroyed, I took him to the hospital ER on Fort Benning. They had a psychiatric doctor evaluate him and he recommended that we put him in an inpatient facility in town, the Bradley Center. My six-year-old was going to the loony bin. The first time he had spent a night away from me, not in the care of his grandparents. How could I protect him? Would he think I abandoned him? My head was spinning. This was my baby, and I had no one with me to help me make the right decision. Thankfully, kids are pretty resilient, and he did not cry or get upset when I took him and had to leave him there. I cried for the next week while he was there, calling every morning and evening to say goodnight and going in for the only two hours per day I was allowed to visit. The staff told me they didn’t feel he needed to be there, so after a week, Taylor came home. He was in outpatient care five days a week for a month, and had a new doctor and a new diagnosis: Asperger’s syndrome. 

2 readers liked this story.
From Around the Web:
It feels good to write.

Your stories, musings, and advice are welcome here. We know you've got something to share, so jump in!

Article_sweeps
Most Liked Stories
Loader_buff
Sweeps_offers_article_300_top
Win a $10,000 escape to Jamaica! Enter as often as you wish.
Win a $10,000 escape to Jamaica! Enter as often as you wish.
VIEW ALL