Living with Fibromyalgia

I’ve been on bed rest for the past 4 days ... recovering from a frightening fibro flare.  In case the word fibro or flare is new to you, it’s when the pain dragon enters your body and inflicts stabbing, burning, riveting, mind altering pain.  As if that were not enough, the pain dragon confuses your mind—you suddenly don’t understand the simplest statements—that is if you can actually hear them.  Your body is no longer functioning by your thoughts and commands. I could hardly climb the stairs to my bedroom and when I got there I needed help to change into my sleep wear.  Oh, how wonderful those sheets felt and the pillows that my sweet husband surrounded me with. The meds were a good thing too.  Thank God for meds!

I had gone to see my doctor—let me back up.  As the extreme over-achiever I am,I dragged myself to work in pain convincing myself that I had to be there to support the War-Fighter.  My job is important and this time of the fiscal year everything is a priority.  Not only am I an over-achiever, I am very patriotic.  I work for the Army.  At any rate, after leaving there for my afternoon doctor’s appointment, I was able to hold it together until my doctor entered the examination room and asked, “Bev, what’s going on?”  Every cloud broke and the tears rolled uncontrollably like a thunderstorm.  I was a mess, y’all.  I must have sobbed for minutes before uttering all that was wrong with me and my world.  I hurt everywhere.  My entire core was blazing in pain.  Blinking was painful.  So, as I sat there dumping it all out, Bethany (my doc) comforted me and assured me as she always does ... “We will get through this!”  It’s not just the pain that fibro causes, but more severely is the loss of cognizance and the ability to speak the words that seem to be right on the tip of your tongue.  My mind was foggy to say the least and I was so forgetful.  Add to that vertigo.  I was a complete nervous breakdown, crying in a box of tissues, crazy acting mess!!!

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From Around the Web:
what would you say to a man that claims to love u and in the same breath, can feel nothing wrong with making a statement against you for taking the much needed rest this disease demands of you? I recently was told by my significant other that he could not be there for me the way I wanted him to be, because I needed so much bed rest.(yes, I cleaned that statement up allot to post here). I after that walked away from the relationship but his words still cut my emotions like a knife.
Phoebe, much has changed since I wrote that article. I enjoyed my "pain-free" days...months even. The Pain Dragon once again appears whenever he chooses, but the difference is..I choose to stay positive, meditate to eliviate stress and learn to identify the pain dragon'save to let employees. Some folks just can't help being irritating but I don't have to let them get a promotion from their employer either. Thanks for your comments and I will continue to write on this forum....soon. Bev~~
Beverly; You are so right about how many suffer from Fibromyalgia in silence. It has been such a long battle to get the Doctors and insurance companys to understand this illness and give us the type of care and treatment and coverage that is necessary . I like how you describe it as a dragon, nice parallel. I have had this illness for well, most of my life. It rots as you know. I am happy for you that your family and doctor is such a support group for you! :) Those are very key elements for not only Living with Fibromyalgia but Survival with Fibromyalgia. rest,nutrition,balance, faith, and knowing when to accept the changes in your life and accept them as that Changes,not failures are HUGE keys. keep well.
Thank you Gale for your comments. It had been a long hard week for me and I just needed to get it out! Honey, you are not alone. Some of us suffer in silence...but I plan to tell the world about it. We didn't ask for this...but we can get through it moment by moment...let's celebrate the moments! Bev~~
08.27.2011
Gale O'Malley
I could not have said it better myself and my hands hurt so much I couldn't type that much. Thank you for publishing this it makes me feel like I'm not alone in my all consuming pain. Thank You!!!!!!
It feels good to write.

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