The diagnosis has been given. Dealing with it begins now.
As Tug’s primary caregiver, I found there was no absolute blueprint for caregiving. Together with Tug’s children, we found ourselves taking crash courses in neuro-oncology, house management, and medications. We learned about the needs of the patient…and the importance of patience. As caregivers, we share the disappointments, the losses, and the confusions of those in our care, even as we struggle with our own anger, fatigue, and emotional pains.
The top two questions I’m always asked is (1) how did I do it, and (2) what advice can I give? I wish there was a simple answer, but there is not. In my case, my goal was to keep myself functional and maintain a sense of balance in order to give Tug the best care I could.
At first, I fumbled my way through it. But soon, as I began to empower myself with more information and better understanding, I began to find my way. As caregivers, you will also experience pitfalls and triumphs, but there is strength to be found from others that have been there and the knowledge they can provide.
And we’re here to help.
Jennifer Brusstar CEO, President The Tug McGraw Foundation
Top Ten Caregiving Tips
Learn about brain tumors and treatments
Identify who has the primary caregiver role in the family
Develop a plan for managing crises
Recognize that feelings of frustration and anger are normal
Find and use resources that can relieve some of the burden
Take care of your own needs for rest, food, enjoyment, and relaxation
Share the care
Form a support network for yourself
Maintain a positive attitude toward caregiving
