From Despair to Inspiration

By: Dave Nelson (View Profile)

I am the father of a nineteen-year-old son named Graham who was diagnosed with autism when he was three. We could have—and on bad days, should have—identified him earlier, as he sat on the floor so quietly and spent hours looking at ceiling fans and then exploded with unexpected frustration about things we never quite understood. The first three years are now a blur, but at the time they were an excruciatingly sharp and slow experience of learning that either a) parenting wasn’t as fun as everyone said it should be, or b) we just weren’t very good at it. After three years, pushed by a pre-school (who knew that a child who spent all of recess dropping pebbles in a hole was not really okay) into seeing a developmental psychologist, we began a more productive, though in some ways no less challenging, journey. We learned to understand Graham, and we gradually learned to work with him, to get down on the floor and entice him, coax him, prod him, and challenge him into being engaged and interactive with us.

We learned about the DIR Model (Developmental, Individual-Difference, Relationship-Based Model) put forth by Stanley Greenspan and Serena Wieder, and we learned how to do “floortime.” Floortime is a way of connecting with a child that focuses on what is called “affect-based interaction.” This means that we did everything we could with our bodies, our voices, our facial expressions, and our gestures to get Graham alert, aroused, emotionally engaged, and communicating. If he wanted to drop pebbles in a hole, well, we found a lot of pebbles and then handed them to him—but then sometimes handed him a ball so he would look at us and complain with his face, or with a sound or with his body language. “What’s wrong?” we’d say, mock innocently, and he would scowl, and sometimes point at the pebbles and look at us. This was affective engagement, and this was a “circle of communication,” the gold nugget of therapy using the DIR Model.

We worked and worked and worked (and got lots of others to work with us) to generate as many of these affect-based circles of communication as we could. And sure enough, over time, Graham got better at staying connected with us, his purposeful communication improved, and his abilities to think logically and express emotional ideas emerged.

5 readers liked this story.
share
bookmarks
Comments
posted: 04.21.2008
Shyla Batliwalla
Thank you for this inspiring piece. I wish you all the best.
Tell us a Story.

You know you've got something to share. Maybe it's something funny, touching, inspirational or informative. Whatever it is, your circle of friends here at DivineCaroline would love to hear from you.

most liked
Loader_buff
Other topics you might appreciate
Relationships Body & Soul Style Career & Money Home & Food