Sandra Mullen

Sandra Mullen's picture

Sandra Mullen

I like clothes, make up and shoes, especially flip-flops,&nbsp; of which I have a whole basket full and a number of pairs scattered around the house. I was an RN for 25 years, 10 of which involved working in an innerog city trauma center, and flying as a flight RN, logging over 500 patient transports, not including the flight of 2 German Shepherd Rescue dogs. While I was a flight RN, I noticed I was having problems finishing my 5 day a week workout at the gym and, after moving to South Florida in 1994, was diagnosed with lupus and fibromyalgia. I met my husband in Florida, while working in a medical ICU. We married in 1997 after dating for only 6 months. The following year we planned to move to Denver and, as life goes, I found out I was pregnant the week we got back from securing jobs and a place to live. We stayed in Florida and I had my son at 33 weeks. He was little but strong. We stayed until he was 4, since my husband's parents lived there, but my father-in-law died and my mother-in-law decided to move back to NJ. So we moved back here too, to be near our families. My lupus worsened in Florida, and I ended up on Social Security Disability in 2002.&nbsp; Since then, I've become a lupus advocate and an educator of nurses on the care of lupus patients. I've been unconscious from respiratory failure twice, once causing cerebral anoxia (House fans will know that means brain damage). I still can't remember some things from before that coma, but generally I'm still fairly intelligent. <br /> <br /> My husband, who is a respiratory therapist, just got a job at our local hospital, which is only 8 minutes away&nbsp; cfrom home. Our little preemie is now 10, has been on the principal's list for all A's since 1st grade, and is going to Space Camp this summer.&nbsp; Like most folks, we're struggling a bit with this economy; we were going to put in an in-ground pool last year, but couldn't get the financing for it. I do water physical therapy at least 3 times a week at our hospital's wellness center, but if we could put a pool in, I could do it every day. I have osteoporosisi in my lumbar spine, which makes me very susceptible to fractures and I took care of enough women with spine osteoporosis to know that it only takes a sneeze or cough to break a vertebrae.<br /> <br /> I'm determined to get my life back. Starting physical therapy again has reminded me of how good it feels to work out. I'm so overweight it's frightening, and everyone, including my rheumatologist, blames it on my 15 year dependence on prednisone. I'm waiting to hear when I can start weaning it again, but the last 2 trips to ICU was when I was weaning it and the lupus in my llungs started acting up, so it's nerve-wracking. I'm going to be on the phone on May 23rd, when Moody Blues tickets go on sale for their concert at the Borgata, in Atlantic City. I want good seats. I've had first row seats and last row seats and first row ar7 e definitely better. After going to 27 concerts, I think I deserve good seats. My son went with my husband and I to their last concert at the Borgata, and he loved it. He should- he heard it when I played their CD's to him in my tummy and it was the music on when he was born. Oh, and Laverne and Shirley was on the TV, so I hope he heard Justin Hayward's voice and not David Lander's (aka Squiggy). I wonder sometimes.....<br /> <br /> I'm hoping for a cure for lupus, and a specific test for it. My new rheumatologist doesn't think I have lupus because all my labs came back normal. So she stopped one of my medications, which takes 3 months to leave your body and when I've stopped it before, I flared terribly 3 months to the day. So don't try to find me on July 18th: I'll be either in bed or at my doctor's office telling her NOW DO&nbsp;YOU&nbsp;BELIEVE&nbsp;ME?&nbsp; It's a phrase that all lupus victims have said at least once in their life and there are probably a whole lot of other diseases that are the same way. <br />

Stories by Sandra Mullen

I just read an article online that a Delray Beach, Florida man was arrested for calling 911 twice, saying he was hungry. He was arrested and put in...
Yes, ladies and gentlemen, I am now on Nutrisystem. Those commercials wore me down, and it seemed like the right time to do it. I weighed 304 pounds...
School is still five days away from starting and already we’re mired in controversy over the President of the United States addressing our kids...
I’m sitting here, at 10:45 p.m. with my ten-year-old son, who says he can’t sleep. I reminded him that he goes back to school next week,...
I just read that Social Security recipients won’t get a cost of living increase for the next two years. Big deal? YES, it is a big...
I’ve been without a real computer for almost a month now. My Acer went beserk and we couldn’t find out why, so I decided to breakdown and...
Some say it’s the summer heat, others blame the total eclipse of the sun the other day. Some hypothesize that it’s the economy...
Where were you on July 20,1969? Of course, some of you weren’t even born yet, but keep reading. It tells a lot about ...
It was one of those weekends that my husband was working nights and there was nothing that interested me on regular TV, so I decided to rent a movie...
On the news a few days ago, there was a report that the FDA was considering taking Percocet and Vicodin off the market because they contain...
I’ve been having these recurring, disturbing dreams for the last few months about a man I dated almost twenty years ago. I...
I was having a perfectly lovely Tuesday afternoon (no pun intended, Justin Hayward), when somewhere around four o’clock, I decided I needed to...
When Michael Jackson died, I was upset. I loved his music, and despite his unusual lifestyle, I believed him when he told his side of the story....
When I got pregnant with our son, Conor, it was a joyful and nervous moment. I had had two miscarriages before, but something told me this one was...
I couldn’t believe it when I saw that Michael Jackson had died, at the age of fifty, only one year older than me. And then I found out Farrah...

Pages