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Sandra Mullen

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Sandra Mullen

I like clothes, make up and shoes, especially flip-flops,&nbsp; of which I have a whole basket full and a number of pairs scattered around the house. I was an RN for 25 years, 10 of which involved working in an innerog city trauma center, and flying as a flight RN, logging over 500 patient transports, not including the flight of 2 German Shepherd Rescue dogs. While I was a flight RN, I noticed I was having problems finishing my 5 day a week workout at the gym and, after moving to South Florida in 1994, was diagnosed with lupus and fibromyalgia. I met my husband in Florida, while working in a medical ICU. We married in 1997 after dating for only 6 months. The following year we planned to move to Denver and, as life goes, I found out I was pregnant the week we got back from securing jobs and a place to live. We stayed in Florida and I had my son at 33 weeks. He was little but strong. We stayed until he was 4, since my husband's parents lived there, but my father-in-law died and my mother-in-law decided to move back to NJ. So we moved back here too, to be near our families. My lupus worsened in Florida, and I ended up on Social Security Disability in 2002.&nbsp; Since then, I've become a lupus advocate and an educator of nurses on the care of lupus patients. I've been unconscious from respiratory failure twice, once causing cerebral anoxia (House fans will know that means brain damage). I still can't remember some things from before that coma, but generally I'm still fairly intelligent. <br /> <br /> My husband, who is a respiratory therapist, just got a job at our local hospital, which is only 8 minutes away&nbsp; cfrom home. Our little preemie is now 10, has been on the principal's list for all A's since 1st grade, and is going to Space Camp this summer.&nbsp; Like most folks, we're struggling a bit with this economy; we were going to put in an in-ground pool last year, but couldn't get the financing for it. I do water physical therapy at least 3 times a week at our hospital's wellness center, but if we could put a pool in, I could do it every day. I have osteoporosisi in my lumbar spine, which makes me very susceptible to fractures and I took care of enough women with spine osteoporosis to know that it only takes a sneeze or cough to break a vertebrae.<br /> <br /> I'm determined to get my life back. Starting physical therapy again has reminded me of how good it feels to work out. I'm so overweight it's frightening, and everyone, including my rheumatologist, blames it on my 15 year dependence on prednisone. I'm waiting to hear when I can start weaning it again, but the last 2 trips to ICU was when I was weaning it and the lupus in my llungs started acting up, so it's nerve-wracking. I'm going to be on the phone on May 23rd, when Moody Blues tickets go on sale for their concert at the Borgata, in Atlantic City. I want good seats. I've had first row seats and last row seats and first row ar7 e definitely better. After going to 27 concerts, I think I deserve good seats. My son went with my husband and I to their last concert at the Borgata, and he loved it. He should- he heard it when I played their CD's to him in my tummy and it was the music on when he was born. Oh, and Laverne and Shirley was on the TV, so I hope he heard Justin Hayward's voice and not David Lander's (aka Squiggy). I wonder sometimes.....<br /> <br /> I'm hoping for a cure for lupus, and a specific test for it. My new rheumatologist doesn't think I have lupus because all my labs came back normal. So she stopped one of my medications, which takes 3 months to leave your body and when I've stopped it before, I flared terribly 3 months to the day. So don't try to find me on July 18th: I'll be either in bed or at my doctor's office telling her NOW DO&nbsp;YOU&nbsp;BELIEVE&nbsp;ME?&nbsp; It's a phrase that all lupus victims have said at least once in their life and there are probably a whole lot of other diseases that are the same way. <br />

Stories by Sandra Mullen

My husband picked Chloe from her monthly “spa day” around 4 p.m. My daughter? No, my basset hound. Well, not exactly a basset hound,...
I’ve been keeping journals for my son since he was born. I’m on my eighth one at the moment. When he was a baby and toddler, I wrote...
Another Father’s Day is coming around and we’ve got gifts and cards for my husband; I’m baking and decorating a cake in his honor....
I want to say a big thank you to all you prescription drug abusers: those using OxyContin, Xanax, Ambien, Vicodin, and any other narcotic. It’s...
I read an article on Yahoo! yesterday that said a school in New York City is offering teachers $125,000 to work at their school. Are they serious? $...
If you see me in the store, you’d probably see a morbidly obese woman, usually with a smile on her face, whether walking or using the...
The Wall Street Journal had an article in it that told the story of Wall Street traders who’ve lost their jobs. One, Carlos Araja, was a crude...
For those of you not up on the news, a physician named George Tiller, M.D. was murdered a few days ago, because he performed abortions. No matter how...
On Sunday I decided to take my ten-year-old son and four-year-old basset hound to the beach. We live in NJ, an hour’s drive from Ocean...
When my son Conor was five years old, he featured on the front page of our local newspaper on Christmas Eve, as an example of what giving can do. You...
When I became pregnant with my son, Conor, it was a total surprise. We had been trying to get pregnant, but I had had two miscarriages and we decided...
My son is ten years old and three weeks away from the end of fourth grade. He’s missed twenty-four days of school this year, mostly for stomach...
I just finished reading an online article by Sean Tucker, reporting “The Worst Drivers in America,” as rated by GMAC Research. At the...
I love CSI. I’ve watched it ever since CSI: Criminal Investigation hit the airways. I think Jerry Bruckheimer is a genius. Mix murder with...
One day, about a month ago, my ten-year-old son came screeching up the stairs. “Mom! Mom!” I thought maybe another tooth was loose,...

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